Hospital

Well it has been one long road for little Katie. We have been in the hospital for a couple of days due to some very severe headaches that brought us to the emergency room in Madison. She is such a little trooper. She takes everything in stride. Even being in pain the little girl wants to play.
The Doctor has her on Oxycodone every 3 hours and morphine every 3 hours to keep the pain away and to stop the pain from breaking thru. The surgery is still scheduled for October 2nd although the doctor thought about moving it up but didn't want to do it that way because he wanted to be able to take his time and make sure he got everything done he wanted to,. He was when you do emergency surgery you just get in and get out, if it is scheduled you can take the time to do it right.
She is doing better so all of you prayers are helping our whole family and we appreciate it.

Katie's diagnosis

I am writing to let you all know that Katie needs to have brain surgery. They have to redo the decompression surgery she had done last year. The MRI scan showed that her brain again was under a lot of pressure, and that the fourth ventricle was probably blocked again because there is no CSF flow between the brain and the spinal column. Her brain is under a lot of pressure which is making her left side act up again and causing her left eye to have the nystagmus bag and causing a new symptom, lazy eye. She has marked weakness on the left side of her body and she is in a lot of pain. She still has those darn headaches and she also has started drooling. I hope this will be the end of her surgeries. We have the best Doctor for her now as far as I am concerned. Dr. Iskandar is a godsend. He has been there for us when we have needed him and has listened to us. He has taken all of our concenerns into consiteration and has not blowen us off. This has been the first time we as parents have been given the opportunity to talk on outr daughters behalf. I would recommed him to anyone who has a child with ACM.
So Please Keep Us in you thoughts and prayers and I will keep you updated with my thoughts and Katies progress.
Laurie